The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies, and alliances with patient groups around the world is laying the foundation for breakthroughs that can improve the lives of millions who suffer from various “long haul” diseases.

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The You + ME Registry and Biobank is an online clinical study committed to identifying a cure for ME/CFS, Long Covid and other post-infection diseases. The Registry is a fundamental strategic initiative aiming to create the world’s largest longitudinal ME/CFS database and make it available to researchers around the world. We incorporated Long Covid — which shares many similarities with ME/CFS — so that understanding one can illuminate the other.

Designed for and by patients, the Registry community is made up of people with ME/CFS, people with Long Covid and control volunteers collectively providing the research community with critical insight into the lived experience and genetics of these and other post-viral illnesses.

 

We’re confident that the energy of big data will unleash otherwise elusive insights about ME/CFS and Long Covid as it has for other complex conditions, such as cancer. Cohort selection within the Registry can expedite a study’s recruitment and maximize its success. With thousands already enrolled, the Registry is growing rapidly, becoming a richer resource for researchers every day. The Registry strategically strengthens and expands our commitment to research, powering the possibility of experiments designed to drive directly to a cure.