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Open Medicine Foundation

Since our inception in 2012, Open Medicine Foundation (OMF) has raised over $30 million to fund open and collaborative research and improve health care for millions suffering with chronic, complex diseases such as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Long COVID, Post-Treatment Lyme Disease, and Fibromyalgia.  


We have facilitated and funded the establishment of six research centers across the globe dedicated to diagnosing, treating, and ultimately preventing these related chronic, complex diseases.


Open Medicine Foundation is a US based global nonprofit, with an affiliate organization in Canada (OMF Canada) and a foreign branch in Australia (OMF Australia Ltd). Our 19 member Scientific Advisory Board is world renowned and includes two Nobel laureates and six National Academy of Sciences members. 

Solve M.E.

The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies, and alliances with patient groups around the world is laying the foundation for breakthroughs that can improve the lives of millions who suffer from various “long haul” diseases.

The You + ME Registry and Biobank is an online clinical study committed to identifying a cure for ME/CFS, Long Covid and other post-infection diseases. The Registry is a fundamental strategic initiative aiming to create the world’s largest longitudinal ME/CFS database and make it available to researchers around the world. We incorporated Long Covid — which shares many similarities with ME/CFS — so that understanding one can illuminate the other.

Designed for and by patients, the Registry community is made up of people with ME/CFS, people with Long Covid and control volunteers collectively providing the research community with critical insight into the lived experience and genetics of these and other post-viral illnesses.


We’re confident that the energy of big data will unleash otherwise elusive insights about ME/CFS and Long Covid as it has for other complex conditions, such as cancer. Cohort selection within the Registry can expedite a study’s recruitment and maximize its success. With thousands already enrolled, the Registry is growing rapidly, becoming a richer resource for researchers every day. The Registry strategically strengthens and expands our commitment to research, powering the possibility of experiments designed to drive directly to a cure.

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ME Action

The Myalgic Encephalomyelitis Action Network (#MEAction) is an international organization that works to develop and support a global network of individual advocates, local and affinity groups, city and state chapters, and country affiliates. #MEAction is people with ME, caregivers, family members and allies.


#MEAction is building a global movement to fight for recognition, education, and research so that, one day, all people with ME will have support and access to compassionate and effective care. #MEAction provides tools, trains advocates, and embed them in networks so that all members can become effective participants, educators and leaders in the fight for long-term, strategic change. #MEAction believes that when people with ME and their allies are empowered to take action, the impact of our work multiplies. #MEAction’s global protest campaign, #MillionsMissing has led to hundreds of protests around the world. 

#MEAction recognizes the obstacles we face are enormous. The status quo has persisted for decades. Because of this, #MEAction knows we not only need to effectively advocate within the current system, we have to get creative, experiment, learn, and iterate to change the state of play. #MEAction endeavors to push the boundaries of what is possible.

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